Our thoughts, prayers & love go out to you both as always.
Hopefully once Fran starts treatment the pain will reduce dramatically and she will start to feel better in herself.
The sizes of her lymph nodes whilst being very worrying for the both of you are probably not such a concern for the oncologist, I still remember the first scans I had showed a 'shadow' on my chest the size of a plate, and after only a few sessions of chemo this had recuded dramatically.
Keep your faith in the Lord and in the skills that he has empowered physicians with to look after Fran.
Alan & Katrina
Last Cruise: Queen Victoria November 2014
Next: Queen Elizabeth December 2014
Followed by: Minerva April 2015
Again, thank all of you for your kind wishes and I wish I had something good to report but things only seem to go downhill. Fran is especially down today after spending the morning in the Emergency Room. She feels as if she can't even get a little break from bad happenings.
Yesterday she awoke with what looked like a mosquito bite on her cheek. We paid nothing to it. Then last evening it started to swell and she developed a low fever. She was extremely depressed when we went to bed last evening. This morning when she awoke, the fever had subsided but the entire left side of her face had grown to the size of a grapefruit! As it was just above the enormously enlarged lymph node in her neck we didn't know what to think.
At the hospital they diagnosed celulitis (an infection in the skin that is usually strep or staph) and gave her an IV of antibiotics. After checking with her onocologist the lead physician of the ER (who is a friend) told her to have a prescription for the antibiotic filled. If the size of her cheek was worse tomorrow or she developed a temp of 101 to get back into the hospital.
It's been six hours and while it hasn't declined in size at least it hasn't got worse so we presume that's good. We both are so deathly afraid of any infection (she almost died twice in the past two years from pneumonia)and to learn that she has probably a staph or strep is some hit to our solar plexis.
She is terrified she won't be allowed to commence chemo on Tuesday. Alas we just hope there is a dramatic decrease in the swelling.
Again, while all of your comments are so very appreciated, there really is no need to respond to each of my postings. I only do them to keep you informed as so many of you have asked.
Things may be looking up even though Fran was worse and had to return to the ER this morning.
She awoke with the swelling spreading up to under her eye and the whole area had even swollen out still more which we thought would not be possible because it was so huge yesterday.
I am so thankful our friend Remy (the physician who actually runs the ER) was there this morning. He was glad we brought her in as it turned out she needed a shot of Rocepherin as opposed to another IV of Clindamycin which she continues in pill form. Although the swelling grew larger the area was softer to the touch than it was yesterday which he said is good. Also she still doesn't have a temp. Although we both know things could go "South," we nevertheless hope today we'll turn the corner. We thought she would probably be admitted so that to us is a positive sign that she wasn't.
She must see her Oncologist tomorrow and she is praying this won't cancel out her chemo.
It's 1:15pm EDT and I just talked with Fran who is receiving chemo. I must tell you things are not going well......at all.
She is receiving both Retuxan and Treanda. She had no problem with the Retuxan in '06 but she had an horrific reaction (convulsions) this morning. They got that under control by reducing the rate of flow. I know not if they have already given her the Treanda or not.
By far, the most frightening thing to me is that the infection that developed over the Holiday on her face is not a result of a scratch, insect bite or anything such as that. It is a result of the explosive growth of the lymphnodes especially the one in her neck which is constricting blood vessels etc. She told me on the phone that because of their having to restrict the flow of the Retuxan, she is going to be there possibly two hours longer than the seven or eight hours we were initially told it would be.
Her oncologist told her that he hoped the chemo would be effective......
I shall continue to keep you updated as conditions warrant.
Your continuing prayers are so very much appreciated.
Oh my gosh Todd, you must be going through hell with worry, not to mention the hell that Fran is going through herself.
Please know our thoughts and prayers are with you both. Hoping things turn around soon for the better....
Fran is now home and is absolutely worn out. Her face is still greatly swollen and discolored and neither of us have a clue as to what the future holds as to symptoms or anything else.
On the way in to pick her up I stopped and got two large containers of Egg Drop and Won Ton soup from our Chinese Buffet. Fran is from New York and loves real Chinese food. She says this is without a doubt the best she has ever had, and here it happens in East Tennessee of all places.
She did have the second Chemo drug (Treanda). Tomorrow she returns for an hour and a half of additional chemo followed by shots on Thursday. That's it until August except for weekly blood tests.
She is on the phone with her niece after which I'm putting her to bed.
Thank all of you again for your prayers and concern.
Following that frightening start on Tuesday, Fran tolerated her chemo fairly well (thus far at least) and today she only has to have a shot. Hopefully following that, she's done until next month. She is of course extremely tired but that already seems to be improving (at least until we begin all over again next month). Yesterday afternoon was over four hours as opposed to what we believed would be only two and a half to three so we will adjust schedules accordingly next month.
I have put on hold my follow up tests in Cleveland that were scheduled next week. We'll cross that bridge at a more opportune time.
There may be a fly in the ointment, however, we just don't know. Fran's oncologist walked into the chemo room yesterday and said he was going to make an appointment up in Johnson City for hopefully next week to have the large swollen lymph node in her neck aspirated. This is to try and find out why the recurrence of the Lymphoma was so explosive and to insure that the treatment she is receiving is optimal. Thus far the swelling in her cheek has reduced dramtically and there may even be a teeny weentsy bit of reduction in the size of the lymph node in her neck. Maybe it's only our wishful thinking, but we choose to look at it that way. :-)
Todd, I pray for you both to get through this trying time in your lives.
“Twenty years from now you will be more disappointed by the things that you didn’t do than by the ones you did do. So throw off the bowlines. Sail away from the safe harbor. Catch the trade winds in your sails. Explore. Dream. Discover.“
My continued thoughts prayers and good wishes are going out to you and Fran. Take care of yourself too, and may God continue to give you what you need each and every second of the day to get through this.
Location: Wisconsin....about 100 miles south of the Frozen Tundra and 70 miles east of Camp Randall
Todd - prayers going out for both Fran AND you!!!!! While I know you think that Fran is the priority, please don't neglect your own health! ((((((((((((((((((((((((((((((HUGS TO both OF YOU!)))))))))))))))))))))))))))))))
Carnival Breeze with Ray B and Aerogirl 5/4/14!